Lived Experience Forum

[Former-Member]

when you say inevitable do you mean the quadraplegia?

[darrenhayes]

Yes and very very earlydementia

[Former-Member]

sounds like a good plan to talk with your psychologist about it all. the unknown is usually more scary... having a plan can help you to feel in control.. at least a little bit. Is your appointment soon?

lj

[darrenhayes]

If it was faced with one quad or dementia I'd have something to work with but that's not the reality

[darrenhayes]

Yes thursday

[Former-Member]

yes, i cant imagine how it must feel. The future is never known though.. things with the brain in particular are very hard to predict... drs still don't really know enough! someone i know had bad accident as a child, had a closed brain injury, was in a coma for a while.. drs really had no idea on what the effects would be.. it was all wait and see. it could do this it could do that.. even after he woke up.. each year they would note effects and possibilities. but he was lucky and ended up doing ok

lj

[darrenhayes]

Welj where it was technically I should of had both d and q on day 1

[Former-Member]

yes, i really hope for you that things continue to be stable for the long term!

I'm really sorry i need to start getting myself ready to try and sleep (probably a wasted effort) 

I wish i could be more helpful, 

lj

[darrenhayes]

Thank u I hope so too

[darrenhayes]

Hi I have a query for tomorrow has sane petioned google for an app to be placed on the Google home page a mental health app? That would be the pi nacle to save lives